The shape(s) of narratives that spill and flow over neat lines and boxes

Resonance and representation in The Shape of Water

The Shape of Water (2017) and its relationship to disability narratives is undeniably complicated and at times flawed.

Some of us who identify with parts of the film and characters, have, as Emily points out on Twitter, problematic lives. My interpretation of problematic is operating outside accepted narratives (Emily may have a different definition; this is mine).

The Shape of Water follows Elisa Esposito, a nonspeaking woman living in 1962 Baltimore. While hearing, she uses American Sign Language (ASL) to communicate. Her friends are Giles (a gay artist) and Zelda (her Black coworker and sign interpreter). She works as a cleaning woman for a high-security government laboratory. There, she bonds with the facility’s newest “Asset,” an amphibious, humanoid creature. They fall in love. Elisa, Giles, and Zelda then work against the laboratory to return the “Amphibian Man” to the water and save his life.

There have been critiques about linking disability to otherness. But what happens when you’re different all your life, even if not identified as disabled?  Autistic writer and reviewer Sarah Kurchak pulls the following quote from the film’s director, Guillermo del Toro, in Vanity Fair: “monsters are evangelical creatures for me. When I was a kid, monsters made me feel that I could fit somewhere, even if it was… an imaginary place where the grotesque and the abnormal were celebrated and accepted.”

Further discussion of (in)humanity and monsters

There have been critiques about linking disability to monsters. So what happens when you’ve always felt at least slightly inhuman? Kurchak notes in the review at Consequence of Sound that: “When the world sometimes tells you that you’re a monster, and when you love movies but can’t see yourself in the heroes, you might start to find yourself identifying with the monsters. And then you might start to find yourself wanting better for them. So you create your own stories for them, and for yourself.”

Chavisory says on Tumblr: “Whereas a lot of us who didn’t have those narratives…our minds filled in the blanks in some pretty interesting ways. Including various iterations of not being completely human. Obviously it’s a problematic movie, but I readily and pretty unconflictedly identify with aspects of both Elisa and the Amphibian Man.”

So, what might happens is that you identify with Elisa. Or the Amphibian Man, or both. Elisa, despite it being hinted that her childhood neck injury is the cause of her not speaking, is likely autistic. Maybe the film resonates with you and the representation is meaningful. For me that happened in the casual stimming, the way she moved, and within the first fifteen minutes, the scene where she first meets the creature. I saw in her and on her face the realization that she’s found another society deems “other.” The wonder of immediately needing to touch and use her hands to complete the recognition.

Elisa meets the creature

The protagonist Elisa, a dark-haired woman, leans over the tank with the amphibious creature. She has her hand hovering just above the glass, about to place her palm on it.

Watching the film, I had the realization I’ve found another society deems “other.” I found representation in The Shape of Water. I have always been the Other.  I have been the Other to the point of having a trauma history. And people are now saying it’s not representation at all because it is harmful in messaging. It is not without problems. It is still representation. And I have to wonder how many of these people have ever felt more than a touch inhuman. (If that’s you, then we can maybe talk about it differently).

Elisa found another outcast to see the possibilities in. Are you going to tell me that society should not start addressing how it treats those seen as monsters? Are you going to tell me that I have never felt inhuman from all the things the world has done and said to me, and that I do not deserve to have someone look past what has been painted on me as Other?

I do not think the film is perfect. I think it is still representation. But people are saying it is not representation at all. And when you say that, what I hear is that

those of us who struggle with feeling human in the face of the world, who sometimes identify with the Other and embrace it as a tool to survive, whose narratives and relationships to representation are messy and muddy the waters… should stop trying to find ourselves in representation or anywhere, our very existence and attempts at representation faulty.

We’ve been told that we’re faulty enough already, thanks.

.  .  .

Further Reading


Prejudice after mass shootings is a well-defined pattern

Alternate Title: This autistic with mental health disabilities would like others to develop better pattern recognition skills.

East Coker

Image text:
You say I am repeating
Something I have said before. I shall say it again.
Shall I say it again? 
-From T.S. Eliot’s “Four Quartets,” Part II: East Coker

I have an inordinate fondness of T.S. Eliot’s poetry. I have significantly less fondness of repeatedly having to tell people to stop blaming mental health for mass shootings. But yes, I shall say it again. Because a 2017 Georgetown Public Policy Review article by Delaney Luna notes that “a 2015 study found that 63% of Americans blame untreated mental health problems for mass shootings.” Because “contentious studies associating mental disorders with violence are often cited as fact, overstating the propensity for mentally ill individuals to commit violent acts, and promoting these ideas to the American public.”

(Unfortunately, often gun control legislation introduced in the wake of shootings targets disabled people. There is clearly a mass shooting problem, but any solutions need to be non-biased and not ableist. The public policy article does set up the dichotomy of blaming mental health vs. gun control, so keep the above in mind).

So yes, I shall say it again. Stop scapegoating social minorities – people with mental health disabilities – and evading the real problems. There are patterns to how people respond to these incidents, and patterns behind the motivations of perpetrators.

Fact: There is usually a history of things like domestic violence or white nationalist supremacy discovered in the backgrounds of those who commit mass shootings. Response: Many people, including government policymakers, decline to do anything but blame terrorism (predominantly if the perpetrator is or thought to be brown and Muslim), or mental health (predominantly if the perpetrator is white). It is still apparently easier for many people reporting news coverage, or policymakers, and others to deny these patterns. They believe it is better to scapegoat than get at the real problems… better to try and stop us from having rights.

The discussion for the most recent incident in Parkland, Florida revolves around mental health. There’s also talk of white nationalist ties. Which, great, please talk about white nationalism being one of the factors involved. White nationalism – as recorded by the Southern Poverty Law Center – has a body count even as its proponents play respectability politics in some arenas. But some coverage is talking about white nationalism – and mental health – in the same conversation, and it needs to stop. One Tumblr user puts it well in their post “Extremism is not a function of mental illness.”

Most extremists are average people in a socially vulnerable position that extremist ideologues can exploit. People who feel disenfranchised (legitimately or not.) People who are socially isolated. People who are scared, or angry, or feel cheated.

This isn’t mental illness: this is a social problem.

This is exactly what happens every time social change comes to a head.

It becomes violent when someone feeling threatened by the changes decides it’s time to put the social change back the way it “should be.” It becomes violent because these people are told by their extremist social group that the world is getting out of line because they haven’t stopped it.

Stop saying, directly or indirectly, that only people with mental health disabilities can be responsible for atrocities and violence. We are not, in fact, more likely to be the perpetrators of such violence. Luna notes in the Public Policy Review article that “only about 3 to 5% of all US crimes are committed by individuals diagnosed with a mental illness, and fewer than 5% of all gun-related killings between 2001 and 2010 were committed by individuals with diagnosed mental illnesses.”

Stop saying it when most of us are engaged in such a struggle to survive already. Fun fact: I just got out of a psych ward again within the last few weeks. Surviving is hard.

Diagnoses from hospital stay.

[Partial screencap of diagnoses from my most recent hospital stay, including autism spectrum, suicidal ideation, and bipolar disorder – unspecified. Name of hospital and dates removed.]

Stop saying extremism and its resulting violence is the result of mental health disability. Stop tying mental health disability to white nationalism, the way that’s being done now after mass shootings and whenever the Trump administration does something terrible and/or linked to white nationalism.

So yes, I shall say it again: Stop trying to tie mental health disability to all the occurrences you pretend are unexplainable by anything else.

We’re already dealing with enough without scapegoating being pushed as “mental health reform” and being blamed for social problems that are explained by multiple other factors. We already know you don’t actually want to help us – just protect people from us, but it sure would be nice if you could at least stop making life harder for us.


Conversations on mass shootings do shift with context, and it’s important to note mental health isn’t the only topic of conversation. If the perpetrator was brown and Muslim, Islamophobia comes into play as a prejudice:


Via WA No Modern Asylum:

From my friends in Washington state:

…On November 28th of this year, the Guardianship Forms Subcommittee sent out an email asking for advice on creating specific forms for the Washington Supreme Court to approve or deny a guardian’s request to sterilize the person under their guardianship. Linked here is what the subcommittee believes the forms may look like [7].

…These forms try to make the process of asking the Washington Supreme Court to allow a legal, forced sterilization clearer to parents/guardians as well as speeding up that legal process so that people under guardianship will be forcibly sterilized more quickly than before. Creating these forms will result in more forced sterilizations in Washington state…

So what is to be done?

…The person in charge of receiving comments about the forms is Commissioner Rebekah Zinn (Washington State Pattern Forms Committee Chair). Her email, as listed on the call for advice, is

Please email her opposing this proposal and mention any personal connection you have on this issue. A sample format is linked here at our campaign page… Together, we can make them listen and stop this practice!”

via Don’t Make Eugenics “Great” Again: Oppose Forced Sterilization! — Washington No Modern Asylum

The Judgment about “What Counts” as Sexual Assault

This post goes into detail of an instance of non-rape sexual assault in the first paragraph. 


In high school, one semester, a girl in gym class kept stroking my legs – well above my shins. She sat in the bleachers below me. I told her to stop, several times: it was uncomfortable and I hated and still hate being touched. She cooed at me and mocked my discomfort. I told the gym teacher, and he talked to her, but it didn’t stop. I resorted to lashing out with my legs in the general direction of her face. Finally, I started skipping gym class often that semester.  

I didn’t realize it was sexual assault with the probable intent to do worse until this year. So I never told anyone else at the time, though I don’t know if that would have helped anyway. I thought sexual assault only happened how it did on Law and Order: SVU, which I had caught episodes of in passing. No one ever told me otherwise. Adults in my life told me to carry pepper spray and not walk alone in the dark. They never told me to think about people I was at least vaguely acquaintances with. They never told me what to do if it happened. 

It seems that people, particularly autistic people like myself, rarely get taught about boundaries or consent: indeed, disabled people are often not even taught sex-ed or how to recognize abuse. To complicate matters, many autistic people have been through Applied Behavioral Analysis (ABA). Its methods violate children’s boundaries and bodily control, and leaves them vulnerable to more abuse in the future.

There is also a general perception around sexual assaults that say they’re not “bad enough” or don’t “count,” from all kinds of people. As if it is easy to judge what it is and isn’t sexual assault when you are not the person who was assaulted. It happens to people who have been raped, groped, touched, and/or assaulted in any way. For people who have been groped/touched, it’s that it wasn’t rape, and for people who have been raped, it often is still not seen as a rape. Very few assaults “count.” For disabled people in particular, some reasons include: “you should be grateful someone wanted to do it to you,” and in the case of some disability types, “the person didn’t understand or care it was happening, so it’s not a big deal.”

When people decide they can say what counts as “enough…” That’s not helping anyone be taken seriously when they report/tell people about sex crimes and assaults. Numerous groups of people already have trouble reporting or being believed about assaults. For instance, many disabled people receive direct support from service providers or family members. When these people assault them, it is harder to leave or report assaults. And it helps perpetrators get away assault and makes it more socially acceptable because it’s not “bad enough.”

People who have been assaulted are told it’s not “bad enough” and they should not have too many feelings, or that they don’t have enough feelings so it’s not “bad enough.” And of course, the perpetrators’ feelings are taken more heavily into account. As Rabbi Ruti Regan notes in this piece, “Victims are pressured to disregard their own feelings in order to help perpetrators feel better about themselves.”

If you are: Stop saying we should suck up our feelings because it’s not “bad enough” and it doesn’t “count” and “they have to live with it too”  and …

Stop saying it’s not “bad enough.”


It is important to note that Me Too appears to have been started some time before now by a Black woman, Tarana Burke, when credit is going elsewhere.

Carrie Buck’s letters, and badly written narratives about them

Carrie Buck was the institutionalized plaintiff of the 1927 Supreme Court case Buck v. Bell. In a case rigged against her, the Supreme Court upheld a 1924 sterilization law. The Virginia institution sterilized her, then later “paroled” her: they sent her to do poorly-paid housework for local families. For any arbitrary reason, the Colony could re-confine her. She repeatedly pressed for a full discharge, and eventually won it. These facts are not in dispute.

Dr. Paul A. Lombardo, an academic scholar on Buck v. Bell, writes about these facts in a recent Undark Magazine article. He presents some letters written by Buck during her “parole” and post-discharge period as an untold story. It is a disingenuous claim to say he is presenting a new angle on an untold story.

Buck’s story has been told many, many times, by journalists, historians, a film in 1994, and an upcoming film starring Dakota Johnson. And her letters are not undiscovered, her thoughts not wholly unknown: The letters have been around for years, in the state library of Virginia, and excerpted in journal articles and books. Yet he writes in the article: “We also now know that Buck left her own record.” Buck’s story is albeit being told in flawed ways:  the narrative of her being “mentally normal” as the reason it was wrong to sterilize her. It is a narrative that journalists and scholars have done little to correct, including Lombardo. In fact, he uses these letters to promote that narrative in his article.

And it is true that they have not been publicized in Internet articles such as Lombardo’s (that I could find). But to say that Buck’s thoughts have never been known before, to say that we just now know “Buck left her own record,” is to say that we did not know before that Buck had agency.  To use Buck’s letters to promote a narrative that fails to acknowledge that eugenicists used disability, real or not, as a reason to sterilize people – is also wrong. To use Buck’s letters as proof of “not disabled” meaning she shouldn’t have been sterilized is wrong. (Also, disabled people are often denied agency in a number of ways.)

It is not only insulting to disabled people, but it is also insulting to Carrie Buck and what she went through. Carrie Buck was sterilized under a government law by people who used public fear of disability and “defectiveness” to do it. It was not for people to claim “not disabled” was the one quality that made her sterilization wrong. It was not for people to deny her agency.

Trauma in Fiction and Real Life: In Defense of “The Catcher in the Rye”

holden caulfield ask

[Anonymous Tumblr ask reading: “Holden Caulfield was a whiny self-centered teenager and he didn’t deserve an entire book”]

The above ask was sent to a Tumblr user, who responded with thoughts similar to my own. Holden Caulfield of J.D. Salinger’s The Catcher in the Rye is a traumatized teenager. Catcher is the story of what trauma can look like. It is the story of what it looks like when adults fail youth.

Holden was a vulnerable teenager experiencing so much trauma. He had so much grief of losing his brother, one of the only caring people in his life. He had to survive a toxic school environment where his peers killed themselves and he was implied to be enduring sexual abuse. He narrates his story from an institution in California following the breakdown.

Catcher is the story of what trauma can look like. The book wasn’t the story of “lol angst.” To dismiss that? Means letting adults and parents and educators off the hook to do good. To do right. To maybe support youth in working through trauma and edging closer to adulthood. Catcher is the story of a traumatized teenager. Some adults actively contributed to his trauma. And all of them let him fall through the cracks until the breaking point.

Stop letting traumatized teenagers just fall through the cracks. Stop assuming teenagers are just supposed to be miserable. Remember that just because trauma isn’t immediately visible doesn’t mean it is not serious. Treat pain, whether trauma-related or not, with respect – not as bothersome angst. Talking about counseling options can be helpful, but forcing them into it is not a solution. Training teachers to be better mentors and making sure guidance counselors remain in schools (and improving upon guidance counseling) are useful as well.

.  .  .

I read Catcher in high school, the same time I started dealing with fallout from trauma. I could see in Holden myself. I read and glimpsed what could have happened to me if things had been a little different. I read as the adults in his life failed him, as some in mine didn’t. I was a frightened and hurting teenager. Who didn’t know that it was trauma to even talk about. Who didn’t have any coping mechanisms. Who thus did not remotely know how to cope. Who did not know how to react, to process, to keep my pain at bay from myself and others. I had a support network of sorts. Holden Caulfield did not.

Is that how you want to view traumatized teenagers? Are you going to even recognize the possibility of trauma? Is that how you’re going to react to teenagers’ pain? Even if they aren’t strictly experiencing the effects of trauma? Is it? If you think he is just a whiny self-centered teenager and other iterations of that ilk, I know that this is what you would have thought of me in high school.

If this is how you view traumatized teenagers and teenagers in general – no, they’re probably not going to trust you. If your response to teenagers’ pain is “lol angst,” – especially if you work with teenagers – you are contributing to the problem. If you think Holden Caulfield’s pain is “lol angst,” you are contributing to the problem. The book is not just Holden’s story.

Catcher was once my story. Catcher is the story of so many people who are traumatized and trying to reach adulthood. Catcher is the story of what trauma can look like.

Autistic community issues: “Gatekeeping words” edition

*Update: The autism ask blog has posted a well-worded apology after taking the time to consider many of our thoughts and feelings on the matter.

Tumblr folks: This is an expanded version of my other post.

There has been (another) recent kerfluffle regarding language (this instance is on Tumblr). Specifically, people are gatekeeping the term “special interest”. An autistic person decided that an ADHD blogger who manages a blog for ADHDers was incorrectly using the term special interest due to her being non-autistic. Despite her providing evidence that it is not autism-exclusive, the person went to an autism ask blog. There, they were told the term is autism-exclusive. The autism ask blog is wrong.

With that context: I am an autistic person with ADHD, and I have a request. Could you stop telling me that I have to use two different words to describe the same experience I have that I have no idea which “diagnosis” it comes from? (By the way, brains are not partitioned like that, so my neurology is affected by both, sometimes in very interchangeable ways that you don’t know which one is which!)

And the autistic community, as one blogger​ points out here– has a pretty long history, and we haven’t been this exclusionary with words from the start. I have put together and managed submissions for some of that history at ourautistichistory​ (Autistic History Month). And some of it is probably lost as domain names expired or the list servs went defunct. But the moderator of the actuallyadhd​ blog, who has ADHD, has been involved with list servs and later platforms of the autistic community since 1994. She is an autistic cousin, which is a decades-old term that refers to someone “who is not NT, is not quite autistic, but is recognizably “autistic-like” particularly in terms of communication and social characteristics.”

To ignore that fact, along with the first blogger’s note that these kinds of words have not been considered exclusive to the autistic community from the start – which is roughly three decades ago – is negligent. A community should know its history, and we need to know our history to work for change. 

And it tells people that we are not a community that welcomes people unless they share our specific neurotype. It tells many people who are wondering if they are autistic that we are a community who will not welcome them. That may make them afraid to approach us, or learn more about autistic community and autistic culture. It tells people we are a community who is willing to gatekeep, and that is not what I want people to think of the community I love and fight for.

Expecting ways of communicating to define an Autistic person

Feedback is welcomed, but please see the bottom of the post first.*

Autistics have largely argued that no one should assume we are alike. Our differences include communication styles, external presentations, or supports needed. Being human like anyone else, we also differ in goals, interests, and hobbies. We’re all still Autistic, but we need others to stop basing all their assumptions on that. In particular, people make assumptions from communication styles. Some of us communicate with significant support, little support, or somewhere in between. Some of us use assistive technology and some of us don’t. Some of us don’t have access to language most people understand. And defining us based on communication style we use (or off any one or two traits) is unhelpful.

Yet it’s not just an issue of non-autistic people making snap judgments. Some Autistics who talk neurodiversity on the Internet also like to ascribe certain Autistic traits to select narratives. One such narrative is that those of us who identify ourselves as speaking Autistics tend to be non-visibly autistic and have few direct support needs. Often, the narrative includes the idea that we’ve learned how read non-autistic people’s behavior or at least mimic it. Many posts intended to be helpful for community members are written through this lens. There are Autistic people who fit this narrative, and there is nothing wrong with that. The issue occurs when the narrative doesn’t make room for other people’s stories.

I identify myself as a mostly-speaking Autistic, and I don’t fit well into that narrative. My communication style is assumed to be “expressive” because I talk out loud most of the time. I’ve written about it before in the blog post “You call me expressive and miss the struggle it takes.” There, I wrote about my personal relationship with speech, and the incorrect inference someone made about me. They decided that I couldn’t have many support needs or real struggles with communication out loud.

But I do have a number of direct support needs, somewhere between “needs little to no direct support” and “has high direct support needs.” My mother, who lives several states away, attempts to provide what support she can, but I honestly need more in-person help. I am able to take care of my cat, but taking care of my own needs is harder. I am forced to navigate a system and a world not designed for me with very little built-in to help me. I also am not good at reading people, and it’s a challenge to mimic non-autistic people’s social norms. The majority of the time I also display body language and speech patterns that are visibly Autistic and/or neurodivergent.

Not all autistic people who speak the majority of the time are like each other, and it is harmful to assume this falsehood. I received and still get little support, in the past (such as during college) and now, when I need it. Many posts I see that are intended to be helpful for the type of Autistic they assume I am are actually not, either. And it harms Autistic people with higher support needs than mine, as well. The narrative doesn’t leave much room to presume competence (which is different than valuing a person only if they have some secret gift, which many seem to base their respect around). Few posts in the community are geared to be helpful for high-support Autistics who are very visibly so (Yes, I have admittedly written these posts before, and will probably mess up again in the future).

People who espouse this narrative seem to assume that other Autistics have the same struggles and the same strengths – and therefore there is no room to even consider what high-support Autistic people, and other people who don’t fit the narrative, can contribute to our movement. Non-autistic people should stop judging us from one or two features. But some in the Autistic community would do well to stop, too.

*(For the record – no, I’m not saying most of the people in the community make these kinds of assumptions. Just some do, but it still really needs to stop).


Rooted in Rights is putting together a video project, #IAmAPreExistingCondition, as a campaign to ensure the Affordable Care Act remains law.

You can submit your YouTube video through this form until May 10, 2017. You should think about whether you want all this information out there before doing it, though.

Click here for my video with CC – there is also a transcript. Closed captions should begin automatically when you click play – if they don’t, click the CC button.

Transcript of my video:

My name is Kit Mead, I’m from Takoma Park, Maryland.

Um, I’m autistic, I have multiple mental health disabilities, I am getting tested for and will probably get a diagnosis of Ehlers-Danlos Syndrome, which is a genetic connective tissue disorder. I also have ADHD and a couple of other things.

Without health care coverage for pre-existing conditions, I wouldn’t be able to, like – my psych meds would probably go way up, and they’re pretty expensive, and once I have the diagnosis of Ehlers-Danlos, I plan to start working on stuff for that like physical therapy and anything else my doctors recommend. And of course, living with a chronic illness just means a lot – a lot more expenses generally, and I wouldn’t be able to get coverage for like, any of it.

Because of this, I would tell my legislators that – vote no on the American Health Care Act. A bill – legislation that takes away healthcare for 24 million people is not health care coverage. It’s not protecting the people who need it most. And therefore if you vote for this bill, you are choosing to, you know, basically let millions of people die, so, vote no.

I am a pre-existing condition.


Against eugenics, and for a future that includes autistic and disabled people

Blogging Against Disablism Day 2017

In 1993, autistic advocate Jim Sinclair wrote “Don’t Mourn For Us.” It read “This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be… Don’t mourn for us. We are alive. We are real.” It appeared in the Autism Network International newsletter as an outline of a conference presentation they had given to parents of autistic children.

There are still many people and organizations who believe that autistics should be mourned for in life, rather than death; that there needs to be a way to find the ‘normal’ child who has been lost to autism, or prevent more autistic people from existing – cure culture. Cure culture creates dangerous dynamics, in which there is a strong focus on “fixing” autistic people, along with “battling” and “eradicating” autism. This culture also creates fear of autistic people and traits. One of the sources for the common cure culture we still see today lies in eugenics, a movement that gained popularity in the early 20th century.

It has been twenty-four years since “Don’t Mourn for Us.” We have made much progress. These include advances in representation, such as Julia the autistic Muppet and the company Apple putting out autism acceptance ads. Disability rights appeared on the political stage in a major way in 2016. The Autistic Self Advocacy Network, founded in 2006, has already become a significant player in national public policy. There have been pieces of legislation – like the 2010 Affordable Care Act – that benefit many autistic people, along with court rulings favoring disability rights and inclusive education. The Centers for Medicare and Medicaid Services issued an HCBS settings rule in 2014  that aims to give people with disabilities support in real community settings. Lindt Chocolate stopped donating money from their chocolate bunnies to Autism Speaks. And there are more victories, large and small, I could name.

But some of the largest autism charities in the nation, such as Autism Speaks, are still ones that reject advocacy by autistics, and some people still believe in discredited theories of causation and quack cures. But more disturbing is the eugenics ideology being seen in US politics, and around the public conversation on disability – an example being immigration restriction. The ideas behind eugenics say that behind the moral failings of people – and of society – there is a hereditary cause. Some people, supporters of eugenics argue, are “born to be a burden on the rest.” Conversely, supporters of eugenics also believe there are genetically and morally superior individuals.

As Sarah Jones writes for New Republic: “But eugenics, though discredited, has never been abandoned. In fact, the most powerful people in America appear to enthusiastically embrace the idea that humans can be divided into inherently superior and inferior specimens and treated accordingly… Of course, none of the people in Trump’s inner circle would describe themselves as eugenicists. They would call themselves capitalists, patriots, and Christians.” Examples include Trump’s statements on genetic superiority, Steve Bannon’s desire to “limit the vote to property owners,” and Jeff Sessions’ support for the 1924 Johnson-Reed Act – an immigration restriction law heavily influenced by eugenicists.

And Jones is right. Eugenics ideology is rampant, but I have not yet seen any political figures actually proclaiming themselves a eugenicist. Eugenics has a bad, discredited name to it now, and it’s more persuasive to masquerade under the guise of “Make America Great Again” then outright call oneself a eugenicist. It’s more convincing to cloak eugenicist views in words and actions that make people feel proud, to appeal to people using discriminatory views without ever saying one is endorsing eugenics.

As ASAN’s executive director Julia Bascom wrote for Slate about the Trump administration, disability, and the autistic community,

He sees my community as damaged goods. Recent reports indicate that, in addition to meeting privately with anti-vaccination groups, the Trump administration may convene a task force to relitigate the clear and settled science on this issue, potentially headed by noted anti-vaxxer Robert Kennedy Jr. Like so many of his policies, this isn’t just an issue of a lack of respect for people with disabilities—we cannot forget that this dishonest and unscientific nonsense has a body count.

This administration espouses eugenicist views. This administration buys into dangerous causation theories. This administration sees us as a public burden. Eugenicist views run through so much of the history of cure culture and causation.

Eugenics is a threat to the autistic and disability communities, and it is a threat to so many others.  This threat is palpable as the White House and Congress try to strip 24 million Americans, many of whom are disabled, of life-saving health insurance. It is clear in a leaked draft of an executive order targeting disabled immigrants and their families. We don’t know if Jeff Sessions’ Department of Justice will enforce the 1999 Olmstead ruling, which helps keep states moving toward community integration – along with the Medicare and Medicaid funding that is at risk. It is evident when the White House lights it up blue for Autism Speaks’ brand of awareness rooted in harmful rhetoric and support for causation research.

But, as ASAN’s statement on the White House lighting it up blue reads, “ASAN will not let our community be forced back to the too-recent time when the public consensus was that autistic people should not exist.” I’m with them. The autistic community, and the disability community, must fight as we are able to against eugenicist and discriminatory policies and attempted actions. We cannot go back to being seen as nothing but a collection of causation theories, damaged and broken and in need of “fixing.” And we must fight against any policies that promote prevention research, policies that tell us we should not be part of humanity’s future. Because we are part of the future.